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We just got a dementia diagnosis

What to do in the first month, and what can wait longer than you think.

Quick answer

What to do in the first month, and what can wait longer than you think.

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The first month after a diagnosis is mostly about slowing down. Very little has to be decided immediately.

Short answer

What to do in the first month, and what can wait longer than you think.

What to do, in order

  1. Slow down. Very little has to be decided this month.
  2. Get the specific diagnosis. Alzheimer's, vascular dementia, Lewy body and frontotemporal dementia progress differently and respond differently to medication.
  3. Do the legal work now, while capacity is clear. Power of attorney, medical power of attorney, directives.
  4. Call the Area Agency on Aging serving your county. The Council on Aging of Southwestern Ohio covers Hamilton, Butler, Warren and Clermont counties.
  5. Understand what memory care will require later. Ohio certifies memory care specifically for RCFs serving Assisted Living Waiver residents (OAC 173-39-02.16) -- ask what a specific community holds.

Questions families ask

What is the difference between a CCRC and a standalone assisted living community?

A Continuing Care Retirement Community (CCRC or Life Plan Community) combines independent living, assisted living, memory care and skilled nursing on one campus, usually for an entry fee plus monthly rent. A standalone community offers one level of care, typically without a large entry fee.

What is the difference between hospice and palliative care?

Palliative care focuses on symptom relief and quality of life and can run alongside curative treatment at any stage of an illness. Hospice is for a life-limiting illness, generally when a physician expects six months or less, and typically follows a decision to stop curative treatment.

Nursing home vs. assisted living: which does my parent actually need?

The determining factor is medical need, not preference. If a resident needs 24-hour licensed nursing care, or exceeds Ohio's 120-day skilled-nursing cap for assisted living communities, a nursing home is the appropriate licensed setting rather than assisted living.

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