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The money is running out

Spend-down, Medicaid waiver waitlists, and why waiting makes this harder.

Quick answer

Spend-down, Medicaid waiver waitlists, and why waiting makes this harder.

Home›By Situation›The money is running out

This is the situation families delay talking about longest, and delay is the one thing that reliably makes it worse.

Short answer

Spend-down, Medicaid waiver waitlists, and why waiting makes this harder.

What to do, in order

  1. Work out the actual runway. Current balance, monthly burn including care-level charges, and expected increases.
  2. Contact the Area Agency on Aging about waiver waiting lists now. Ask the Council on Aging of Southwestern Ohio about current PASSPORT and Assisted Living Waiver capacity -- both can carry waitlists.
  3. Find out whether the current community holds a waiver provider agreement. Ask directly, and ask how many current residents actually use it.
  4. Check for benefits already on the table. VA Aid and Attendance is heavily under-claimed; unreimbursed care costs reduce countable income.
  5. Talk to an elder law attorney before moving money. Transfers carry look-back consequences.

Questions families ask

Can the ombudsman act on my behalf if my parent doesn't want a complaint pursued?

No. The ombudsman acts only with the consent of the resident or their legal representative. If a parent with capacity does not want a complaint pursued, that decision stands even when family members disagree.

Is there a fee to use the Long-Term Care Ombudsman program?

No. The ombudsman program is a free, independent advocacy service, funded through the federal Older Americans Act, the state of Ohio, grants and local funding sources like United Way.

Does the ombudsman handle in-home care complaints, or only facility residents?

The Long-Term Care Ombudsman program's core mandate covers residents of licensed nursing homes and residential care facilities. For an in-home care agency concern, contact the agency directly first, and consider Ohio Department of Health or your county's consumer protection resources for unresolved regulatory issues.

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